Wednesday, February 1, 2017

Cheerleader

You know that feeling when you finally see the light at the end of the tunnel only to realize that it is a freight train coming right for you?

Yeah, that was me a few days after seeing my physical therapist.

I get a letter from my insurance company in the mail.

"Your approval claim has been denied. You are not covered to see this doctor blah blah blah.... If you want to appeal this claim, your service member will have to contact us directly."

Heart attack. Then heart break... Then full blown break down.

They just sent me an approval, how is it denied?? What do you mean denied? Only my husband can talk to you?? ARE YOU KIDDING ME?? He cannot call from a submarine to deal with an insurance matter! You are out of your mind!

Terror. What if I cannot get the help I need? What if I have to pay out of pocket?? I don't know how long this will take to heal and get better... What if...it takes a year? I can't afford that. Not in Hawaii on a sailor's salary. No way. Not when I lose my job at the end of January!

So my next appointment I go in to see her...

And I don't even want to bring it up. I really don't. I just want to pretend that I can still keep coming and that I am going to get better... That everything is perfect.

But everything I am nervous about/have an anxiety attack over, whenever I bring it up to her she puts me at such ease.

She immediately gets her part time secretary on the phone with Tricare (my insurance company), because they received two letters as well, one of approval and one of not... And she gets it sorted out before I even leave her office.

She fought for me. And made it very clear that she would continue to fight for me through everything.

So anyways, I am doing all these exercises, contract and release muscles, more than kegel exercises, finding a way to fully relax every muscle. And then at the end of our session she works on the muscles in my back...

Now I have to point out to you, that I have a knot on each side of my spine that runs down the length of my spine into my hips. And I have solid shoulders...not from muscle. From all the knots and tension. My back is solid. And tense.

But have your ever tried so hard to do something that when you don't succeed you just want to start crying? It is discouraging... Very very discouraging...

And I said that, with tears streaming down my face as she asked me to do something and I could not. Physically could not do it. I just started crying... "It is so discouraging... I can't do it."

"That is why I am here! To cheer you on when you are discouraged. Because this is a process and it does not have to be over night.

"I am your cheerleader."

That to me meant the world. Because there was finally someone in my corner who had my back. Who was okay with, I cannot do this, I am struggling and crying because I want this so bad but I just cannot get there right now.

I need that. As someone who demands perfection from myself at every point. I need that. I need to know that it is not a failure, nor a set back, it is just something that will come later on.

Relief. Complete relief.

Maybe I can fix this and repair the holes in my marriage after all.

The crying did not stop there...

You know when something is set up by God? When you walk into your physical therapist appointment and they tell you that you need to go somewhere else for help because they don't specialize in "that." They wouldn't even say the word sex... But they know a person who does and they will get the referral sent over to your doctor to send in again for this new place.

And you walk into this new place.... And are immediately put to ease by your therapist. She asked me questions and wanted the honest answers, no matter how crude or awkward it was. She wanted the truth... She was willing to talk about the hard things that you have been wanting to talk about with someone who could help you for so long... She wanted to know my pain and struggle... She encouraged crying and feeling everything that came with finding healing.

But you know how I really know that God had His hand in this?

She tells me that she was once committed to someone very dear to her that was on a submarine. Those were her exact words. I thought I would start crying right then because immediately she knew my struggles and my pain. She understood what it meant when I said our only communication is through "emails." She just got it when I said that I didn't want to put anything personal cause I never know who is reading. She instantly knew.

And that does not happen. Let me tell you....it is hard for people to get this life, impossible for you to understand fully unless you have walked in these shoes what it is like.

It is a constant sore spot in my life when it comes to talking to people about it... It is hard for me to explain without feeling that I am complaining, to convey truly how difficult every day of my life is... This is not just the regular military where they go on deployments then they are home, maybe gone for a month of training before they deploy again... No. Not this. This is they are home maybe a total of 5 months each year. Total, meaning that is broken up into a weekend here, a week here, maybe a month if you get lucky (more like the boat breaks and they are forced to stay).

And when you are having painful sex...that schedule is hell. There is no time for anything. There is no time to try and work through things and feelings and thoughts. There is no time to sit down and take a good few weeks to discuss your heart and where you want to be.

So when you are already feeling the fear and terror that your marriage might crumble....take into consideration that you cannot fix it. You cannot work on it continually. You have a day here and a week here and hope that the bandaid that you applied will last until you can replace it.

And for someone who is going to be working through such a tough process and deep healing with you... For her to just get it and not have to go into all that and explain all of that....

Heaven. Send.

Then she goes on to discuss why most people have this problem. It is all about the muscles, not a faulty body. How women carry our stress in certain places and it completely takes a toll on us. She asked if I was in pain at that moment. I said, yeah my back is always a bit off, her response, I can tell you are carrying a lot on you because of the way you are sitting.

Then she walks me through a treatment plan...saying what she would like to work on and work through with me. Then she tells me, if all that doesn't work....I have something else to try. It isn't covered by your insurance but it is only $50 up front and that is it. I have other options, and I will help you, I can help you. This is a problem that we can fix, not something that is permanently wrong with you. I have written a whole book on the matter, I can help, I promise you.

I started crying....

Sitting there in her front room, crying. Just met the woman and I am crying in her office. What? Who am I? I don't do that very often... I don't cry with strangers!

But here I am, crying in her office.

Now mind you, there is still skepticism in the back of my mind, I have had my hopes up before and that didn't go well. At all. But I am slowly see more and more light...

And the crying did not stop there....

Tuesday, January 31, 2017

What makes time the healer of broken things?



Time. What is it? Everyone says that it is supposed to heal us, but what makes time the healer of things broken?

It has been two years. Two years since I got married. Two years of the schedule of a submarine, two years of my roller coaster of depression, anxiety and the like, two years of figuring out how to be a married couple, how to run a home and survive the real world.

Time has passed.

You might remember my blog post about painful sex… If not, I suggest you read that first (click here).  I was full of hope for the first time since I got married.

Then I saw an OBGYN for this. You know what they said, you will be fine, use a dilator you are fine just takes time to get over.

Crushed does not even begin to describe the feeling that I had. It does not touch the sinking feeling in my stomach of devastation. They tested me for STDs and sent me on my way. A test that I knew I did not need and one that cost me a lot of money.

Depression came like a floodgate. It is hard to keep your head above water when you feel like you don’t even feel that you deserve the right to swim. I can’t blame it on that doctor’s appointment because I know it would have happened anyways, but it was the tipping point for months of despair and anguish.

Two years of feeling like a failure. Two years of struggling with sex… When I say struggling I don’t mean an occasional feeling of annoyance or frustration. I mean sobbing and spending nights in the fetal position on my bathroom floor and literally not being able to breathe from the pain in my heart.

Did you ever lose someone important to you and the heart shattering that goes along with that?

That feeling in your heart and the physical pain felt in your chest from your heart being ripped apart, imagine nights and nights of that.

Imagine that fear that your marriage may not last because this has caused such division and self-loathing on both ends. Imagine that you love someone so much that it eats you away inside every night. You go to bed with a simple kiss because the thought of even trying to be intimate with one another brings so much apprehension in both your hearts.

He doesn’t want to hurt me. And he knows how much I hate myself every time that I cannot. He is discouraged and there is nothing I can do about it because I can offer no hope either. I start to hold resentment in my heart for the fact that he cannot feel my pain, resentment that he is causing it. I know in my head that he is not the cause, that he is not doing it on purpose. But the heart is harder to convince when it is only feel deep pain. I am just being honest here because someone out there needs to hear this. Needs to know that it is normal and you will survive. I tried not to be resentful…I usually find peace again in the morning, but those feelings still sit there, waiting to pounce again the next time you try to initiate anything.

I hate it. I hate that I fail. I hate that my body fails. I hate that I cannot be close to my husband in this way.

I honestly cannot tell you the last time that we tried. It is too hard on both of us.

But then that burden still sits there on both your shoulders. You feel the pressure to fight this and not be in a sexless marriage. Because where is the fun in that? Where is the deep soul bonding that comes from that? Sure we can talk until we are blue in the face about all the things that our hearts hold, but it is a connection that you cannot get any other way. But at the same time you feel the defeat in the air before you even try and it kills you a little bit more each day. And it slowly starts to separate you and pull you apart, until you finally break and hope all the pieces land in each other’s laps.

I am at my wit’s end. I have faced the door of defeat so many times that I cannot even bring myself to walk down the same hallway anymore. God has seemed to be silent on the matter. I felt like He was just sitting there watching the struggle without offering to help.

Then a few months ago this happened...

I went in to see my primary care physician who is a wonderful caring woman and a phenomenal doctor. I just needed to switch my birth control because I was no longer happy with how it was effecting me. So I went in and they were telling me about all my options and I made a passing comment to the nurse that sex was painful enough as it was, I did not want anything that would make that worse.

Well she told my doctor.

And that woman is amazing.

She came into the room to finish talking with me about which option I would like for birth control and then immediately said, “You should not be living like this, this effects your quality of life and I am not okay with that. Can I refer you to a physical therapist?”

Can you what?? You mean there are people who do that? There are actual physical therapists that specialize in that on this island?? And you want to send me to one??

YES! A thousand times yes! Please!

She cared. She cared enough to get me help and find me help. When the first physical therapist turned me away because she didn’t deal with that directly, she found me someone else. She fought for me. She went to bat for my marriage. And this isn’t the first time that she has fought for me like this. She fought to get me help for my depression. She is always fighting for me. And I will be forever thankful for that. I don’t think that she will ever fully understand how much I appreciate her.

She was the beginning. The start of someone hearing my pain and helping me in a real way. And I just felt this ray of light shining down into my heart and peace feeling that God had not abandoned me, just simply was waiting.


This is the start of my journey. This is the start of my healing. This is just the beginning and I hope you will walk this journey with me.



Sunday, October 23, 2016

Running with chains

Four years ago I wrote:

If you learn to run with your chains, once they are broken you'll run faster than everyone else.

This day last year I was struggling to even get out of bed each day. I could not function, I was so depressed I would sleep for 14-18 hours straight, I didn't even have the energy to eat. I would wake up at 3pm, watch tv in bed until Cody got home, he would help me shower, then we would sit on the couch until we went to bed. He would have to bring dinner home with him every night and that was usually the only meal I would eat all day. Every day was a struggle with the demons sitting on my shoulder telling me the world would be better off without me. Having to constantly battle these thoughts with reason that was so hard for me to find. I could not function. My life was a hole of darkness and despair.

Then my doctor and I found the right medication and it slowly started working. It fixed my brain chemistry. It helped me to see light and colors and meaning in my life again.

But I still have days of struggle. I have days where I have to talk myself into getting out of bed. Days I have to force myself to be active or just do a simple thing like take a shower.

And on those days I feel so aggravated and downtrodden. I'm tired of this struggle! I wish it was over and I was "cured" and 100% happy and upbeat every day! I wish that my feelings weren't so heavy to carry some days.

So today I needed that reminder. Little did my 18 year old self know that I would need to read that today. To be reminded, that one day I'll be able to run even faster than I can imagine now. One day these chains won't be so heavy and one day I'll be able to see how strong carrying them has made me.

I think about how far I have come from last year and I can't even begin to express how grateful I am that I didn't give up. That I kept running.

So I'll keep running cause one day, I'll look back again and realize I'm running even faster and doing even better and be so grateful once again that I kept running!

Thursday, September 22, 2016

Letter to my youngest sister...

Everyone always writes a letter to their younger self, things that they wish they had known, things they would do differently... But I have the beautiful experience of having two younger sisters. One I could not share a ton of wisdom with while she was growing up because I was still making mistakes myself. But I feel like I can impart a bit of my learned wisdom to my youngest baby sis. So here is my open letter to all the younger girls in my life. I hope you read this and avoid my mistakes.


Dearest baby sister,

I have not always been the best example in life. I have made so many mistakes and I hope you were too young to remember a lot of them. I hope you forget all the dumb things I did and put up with and I hope you just remember this version of me. The stronger, smarter, wiser version. But part of me does hope you remember my mistakes. Remember all the things I did wrong and all the wrong turns I made in life. Remember my mistakes, not as a part of me, but as a guide for you to make better choices. If I had to walk the road that I walked, just for the sole purpose that you would not have to walk it, I would do it all over again a million times. So here is what little wisdom I have, I hope you cherish it because I went through a lot of heartache to gain it.

Don't take crap from anyone. Do not let yourself be bullied or looked down upon or ridiculed. Stand up for your choices and believe in yourself and what you are doing in life. But never become a bully yourself. When someone gives you crap, turn it into a compliment for them. When someone tries to bully you, bring them lunch or a candy bar and shower them with kindness. NEVER let how someone treats you define how you treat others.

Smile at everyone. All the time. Be happy to see your friends. Be excited when you see them in passing. Nothing will mean more to someone than a smile. Let everyone know that they are loved and cherished by you at all points in the day. But also, know your boundaries. If someone is taking too much from you, make sure you set up boundaries with them. The people who love you will listen and understand your boundaries. Only hang out with them every other week, or text them only once in a while. If you do this you can put everything into being present and not burnt out when you are around them! And if they still are draining you or causing you drama or pain, show them the door politely. Quietly step out of their life. Or just be done and walk away. The pain of losing someone is temporary compared to the lifetime scars that they might leave on you.

On the note of boundaries.... That brings me to the topic of boys....

I wish with everything in me that you stay as far away from them as possible until they are old enough to treasure your heart and love you properly. But since I cannot lock you up somewhere and throw away the key until then, here is what I want you to remember.

If a boy stands you up, leave him. If a boy is overly jealous of your time and affection, leave him. If he gets mad at you for the littlest things, leave him. If every date he takes you on ends in you crying, leave him. If he blames you for whatever you are upset with him about, leave him. If everything is your fault, leave him. If he can't say sorry when he hurts you, leave him. If he doesn't change his behavior after that sorry, leave him. If you lose friends because he is controlling, leave him. If he is controlling or possessive at all, leave him. If you feel like you are walking on eggshells around him all the time, leave him. If you spend hours on the phone trying to make things right because you laughed at the wrong man's joke, leave him. If you can't be around your family without him embarrassing you or making you spend all your time focused on him, leave him. If he pushes your boundaries, leave him. If he doesn't listen to the word no coming from your mouth, leave him. If he can't control himself when he is with you, leave him. If you can't trust him, leave him. If he pressures you to do anything you don't feel like doing, leave him. If he makes you feel like you are garbage or worthless, leave him.

Even if he leaves a flower on your doorstep the next day. Even if he leaves you a million flowers. Even if he plans a big date to romance you. Even if he says all the things that your heart will want to hear, all the sweet words that will make you want to stay every day. Please leave him.

Character flaws are not something that romance and flowers can make up for. The pain he will cause you, is not worth staying with him. His actions need to match his words. If he says sorry, he better not do it again. You need to put your foot down baby girl because you are not a rug to be walked on. Because regardless of what your heart is telling you, you do not want to be with him.

You want to be a bird that is free to fly, not one locked in a cage in fear that they make the wrong chirp and get wrath in return. You want to be encouraged and enlightened and cherished. You want to be truly loved.

Abuse is not love. Please see it for what it is. And leave. Trust me, you'll thank me one day. It is not worth the scars later on down the road for the momentary feelings you have for him.

You can wait to have sex until you are married. It is possible. I did it. I know you can to. You have to find someone who is 100% self-controlled and will not do anything with you, even if you want him to in the moment. Feelings can get strong, but know your limits and have them etched in stone. You can do it, I know you can. But also, if you fail, don't let shame or fear or guilt eat you alive. Talk to someone about it, move forward, and use it to make your testimony better. Grow from your mistakes, don't let them weigh you down.

Be strong but compassionate, be firm but pliable, be confident but soft.

Don't let the world and its harshness change who you are inside.

If you want to be funny, be funny. If you want to be soft spoken, be soft spoken. If you want to climb a mountain and ride a goat, then do it. If you want to sit at home with a book and a cup of tea, then do it. If you want to be a great person, do it by following who you are, not what Instagram or Facebook is telling you is "cool."

You will get sad sometimes... But if that sadness lasts for too long or is too much to bear, reach out. Talk to someone. Talk to me, talk to a doctor, talk to a therapist, talk to mom or dad. Take something for it if you must without shame or fear or reservation. Don't be afraid to reach out...Because it runs in our family and it is treatable. You are not meant to feel down all the time. The world should not weigh so much that your back is breaking from carrying it.

Mom is always going to be there. You may not always get along because you are more like her than you realize or sometimes want to be, but she is always there. She gets things. She listens and understands. And one day you will realize that being like her is not a bad thing. If she tells you to leave a boy or a situation or friendship, please listen. Trust me. Save yourself the time and effort. Not sure if a boy likes you, bring them around mom, she will know if they do or not.

Also know that no matter what you do or who you are, she will love you. And so will I. You could come to me as the most broken, messed up person, and I will still take you in and help you find what you need. There is nothing so bad that you could tell me that it would ever change my opinion of you.

And lastly, be real. Be honest. Be true to who you are in all aspects. Be honest with yourself and others about your shortcomings. Work to be a better person, but know that you are already a great one. If someone doesn't like you for who you are, then you do not have to be friends with them. You will find people who will fall in love with your scars and your quirks and your humor. You will find people who will embrace you and not mock you for who you are. You are never too much for the right person, you are never a burden to those that really love you. Be who you are, show your flaws, be open about what is going on with you. People will flock to your realness, they will come and find shelter under your honesty.

I love you forever, even if you choose the same path as me,
Kiki

Sunday, July 17, 2016

You Are Being Quiet, Are You Okay?

You are being quiet, are you okay? You really should talk more. Get into the conversation. Why are you so quiet? You need to speak right now. Cody, you need to take your wife home cause she is tired and bored. You look bored.

All things I heard last night. And things I hear a lot. They don't bug me usually.

I don't care that I'm quiet. I don't care when people point it out. But I do care when people are abrasive about it, sometimes without realizing it.

I am quiet when I'm around people. Social interactions are not my thing. More than like two people and I start to internalize.

Nothing is wrong. I'm not trying to be rude or stuck up or mean. I just have nothing to say.

Why?

Not because I don't have words to say... But I think something and then I have to run it over in my head a couple times to make sure its okay to say, that it won't upset or offend someone. I wanna make sure its taken the right way, and said with the right grammar. I want to make sure you understand what I'm trying to convey...

And by the time I have something perfected in my head, we are three topics down the road and it doesn't matter anymore.

So I quit trying to reply to conversations, I just listen. And I'm content listening. Cause its better that way, I'm not all up in my head freaking out about the three things I missed while I was taking 5 minutes to respond to your first thought.

Please know I'm not being rude, and if I am, just tell me. I don't have to speak to be having a good time.

Most of the time I am trying to calm my racing thoughts... Because there are too many things going on.

Last night for example, there were two conversations going on at once the whole night, I'm getting caught in the middle. I can't keep up with both, and talk, and try not to have an anxiety attack...

My husband got to witness my first outward anxiety attack around him the other night. And it did not make me feel good. Usually I hide when I'm having one, or I can talk myself out of it. But not this time.

See we were talking about something very important to us both and I was crying and not the pretty cry either...the I've been holding this in for months while you've been gone cry, where snot is running down your face and every inch of your face and neck is wet. Well when that happens to me, my nose stuffs up and I cannot breathe through it. And bam. Anxiety attack. Freaking out. Hyperventilating. Can't think. Can't breathe. Panic that I can't breathe. Can't breathe even more. What if I die? I am dying. I can't breathe. I need to move. What will help me? I don't know. Can't think. Something has to help. Do something you are dying! You stupid idiot you should not be dealing with this in front of your husband. Hide. Now. Breathe. Hide then breathe. No only breathe. Deal with him later. Breathe damn it. Breathe. Now. I need air.

My husband is a fixer. He has to fix a problem. He has to have a solution. "What can I do?" I didn't know what to tell him.

I don't even know what to tell me.

So he starts playing me a song and singing to me. My favorite song and his voice. He was being himself. And it helped. It gave me something else to focus on. I could calm down enough to breathe again.

But I was so embarrassed, it is demeaning. To literally not be able to control your own mind and thoughts.

You don't want people to witness when your inner demons get a hold of you too tightly.

You feel weak.

And powerless.

And completely drained.

And that's what I'm trying to avoid when I'm being quiet. The panic. The uncontrollable fits. The spasms.

Because I don't want people thinking any less of me. I don't want people thinking that I'm any less of a person. Or that something is wrong with me.

And what I want least of all is the pity.

I don't want your pity. But I want your understanding.

And not just for me.

I want you to be aware that the people around you might be struggling with the same things. I want you to know that being quiet doesn't mean someone is upset always. I want you to know what its like on our end so that you can help the person in your life who is like me.

And I want you to know, if you are like me, you are not alone. You are not a freak of nature. You are perfectly normal. There is nothing wrong with you. Let me say that again... There. Is. Nothing. Wrong. With. You. This is all your sickness talking.

So to those who don't deal with this, I don't share for sympathy. I share so you can help someone else in your life.

And those who do deal with this, I share so you can have a voice when you cannot speak for yourself.

And to those dolls out there (Nicole, this was you...) who get it and help me through it and don't expect anything more or less of me, thank you. Its not enough what you do for me. But I love you for it.

Be brave my lovelies. And be quiet if you must. And don't worry if you aren't speaking. You do you. The rest of the world might understand one day.

Monday, June 13, 2016

You Will Not Control Me Today

There was a time when I was under the impression that my thoughts were normal.

That freaking out to a crazy extent was actually something that people did on a regular basis.

It wasn't until I hit the lowest of lows in my depression that my anxiety level hit a nasty high and I realized, this was not normal.

Looking back on it now, I can see all the signs. But then I did not know what to look for.

Driving to youth group and not being able to breathe, feeling your chest tighten beneath you...just because you had to walk through the door.

Being lost in the store because I literally could not talk to an employee without feeling like I was going to black out.

Heart racing over going into a new restaurant, or one I had been to a million times. Heart racing over the fact that I was meeting someone for the first time. Heart racing because I had to be alone.

And this week, I realized that this started when I was really, really young...

I remember watching a cartoon about this girl who got kidnapped and then her dad found her blah blah blah... Most normal kids would be like okay like one bad dream and it is over.

I spent months being terrified that everyone was going to kidnap me.
I had what I now know as an anxiety attack in a horse carriage because I was sitting by the open door and all I could see was someone reaching in to snatch me.
Months. Months of strangers causing me so much fear I could not breathe. Months of not leaving my parents side. Months of nightmares and not being able to fall asleep because there was someone waiting outside for me to fall asleep so they could grab me. Even after my parents figured out that something was wrong and talked to me about it, I still could not shake the fear.

Crying hysterically all of the sudden in children's church because you are suddenly convinced that your uncle died in Iraq. Or when you have a new children's pastor and they invite you to bring your favorite toy to church next week for a show and tell...and you are fine until it is your turn and then all of the sudden, even though you know everyone in the room, you can't talk and you just sit there crying unable to move. And not being able to be comforted by the children's pastor because you don't know her and it scares you that she wants to hug you so you just start shaking because you are terrified.

Paralyzing fear.

Not just normal little kid fear.

This was big.

But you know, as a kid you don't know how to tell anyone about this.

And it isn't like my parents knew what was going on... There isn't a handbook on parenthood.

And if I am just now realizing what all this stuff was...Cannot blame them for not knowing either.

It is silly things, like roll call in college, and finding a new class room, or group projects, that would make me literally freeze in my tracks, that tell me now what was going on.

Anxiety.

And then when my depression hit an all time low, it reared its nasty head and made itself known.

And it was the most freeing experience of my life.

Okay not so much at the time...

My first panic attack, literally the worst experience of my life. I was convinced I was dying.

But it also helped me to get help for it. It helped me to figure out that, wow these thoughts are not normal, this is not normal.

Freedom comes when you can finally tell yourself, this is your sickness talking, it is not real.

And even though I have found freedom, it doesn't make it any easier.

There are still days that I sit and cannot leave my house. The thought of walking to my door and turning the handle is too much for me. There are days when I have to force myself to get up and get out. For dumb reasons like, that day I happen to be convinced that I am going to get mugged and raped if I open the door.

Two months I had no communication with my husband. Terrifying honestly. But I made it through okay, until the last week when I didn't get an email and everyone else did it seemed like. Normal people think thoughts like, well maybe it didn't come through, maybe he is busy, he is probably working really long hours. But no, not me. I spent the entire week in fear that my husband has died, or punched someone and got in trouble, or went mentally crazy and is locked up in a room, or he decided to bat for the other team and doesn't know how to tell me, or maybe he decided that he just didn't love me anymore and he wanted me out of his house when he got home, or maybe he lost all his memory and could no longer remember that he was married...  Not normal thoughts, especially considering how much my husband loves me. But these were literally my paralyzing fears that I had to talk myself down from every time I checked my email and had nothing waiting in my inbox.

This is not normal.

And that is okay.

Because now I know it is not normal.

And now I know that I can fight it.

This last week I went to a brand new sit down restaurant by myself. And then I went to the bookstore by myself. And then I went to the beach by myself.

And let me tell you, that was the biggest moment for me... I was so proud of myself for conquering my fears in those moments. I might have hid behind my book at the bar, but I didn't stop breathing when a guy asked me to move down. I might have not looked up once from my book at the beach, but I still sat there alone for an hour.

I did it.

And I have to celebrate the winnings because I feel like I lose a lot more than I win. But I cannot focus on the losses. I have to focus on the moments when I take my disease by the throat and scream:

"You will not control me today."



Love, Kiki